Monday, July 25, 2011

July 22, 2011

Johnna lost her battle around lunch time on Friday July 22, 2011.  We know she's no longer in pain and joyfully singing praises with the angels, but it's still hard not having her here with us anymore.  We want to thank everyone for their prayers and their thoughts, kind words, cards and letters of encouragement, financial support and emotional support you've all provided to her and to us as we fought this war.  As she would have told you, she may have lost this battle, but the war was won before she even began it...

Don Moen - If You Could See Me Now Lyrics

Our prayers have been answered
I finally arrived
The healing that had been delayed
Is now realized
No one's in a hurry
There's no schedule to keep
We're all enjoying Jesus
Just sitting at His feet
If you could see me now
I'm walking streets of gold
If you could see me now
I'm walking tall and whole
If you could see me now
You'd know I've seen His face
If you could see me now
You'd know the pain's erased
You wouldn't want me
to ever leave this place
If only you could see me now
My light and temporary trials
Have worked out for my good
To know it brought Him glory
When I misunderstood
Though we've had our sorrows
They can never compare
To what Jesus has in store for us
No language can compare

Monday, July 18, 2011

WE NEED EXTRA PRAYER POWER ... Johnna not reacting well to new drug; has been going downhill since it was administered. Today all counts are poor; kidney function decreasing - results quickly rising to level where they will put her on dialysis; doctor not giving much info; they are saying we are "hoping for her system problems to reverse themselves" - she has had four platelet transfusions this week and will need another today; there is a lump in the liver now which could be a cyst or another tumor; we're trying to sked an MRI to verify what it is (I saw it in there when we did the ultrasound and it's rather large) ... so what we need is prayer that the lump in the liver is only a cyst and that all her other body functions that have gone awry as a result of this new medicine reverse themselves and go back to normal or at least to a safe range.

Thank you and God Bless ...


update from Kara

They are NOT doing the MRI because they think it will be too hard on Jo.  Dr. G is convinced it is a tumor not a cyst.  They are talking dialysis but are waiting until they can figure out what is going on with her lungs.  They're limited on the tests they can do because of her weakened state but are going to try to do some kind of specialized test to check for clots.  She hasn't been able to be on the blood thinners because they can't get the platelets up.

Anyway, that's what I know now.  We can't make any decisions about "what now" until we can get her well again.

Friday, July 8, 2011

PRAISE GOD FROM WHOM ALL BLESSINGS FLOW!

We went into the hospital Weds morning; got a picc put in; was advised Jo's hemoglobin was low. At first they were going to delay the chemo until after 2 units of blood, but then they decided they could start the chemo and give her the blood while the chemo was running. We came home last night. She tolerated the new drug well while we were in the hospital; so far since we've been home, the major side effect has been tiredness. She hasn't been awake for more than ten mins at a time since we came home. Since she was already tired when we went into the hospital and one of the common side effects of this drug is tiredness, we are not surprised by the level of her fatigue. I'm keeping an eye on her for a fever (or nausea/vomiting) as those are the hot points for calling the doctor; otherwise, I'm letting her sleep. She was up to take her medicine and up to eat a little dinner, but mostly she's sleeping. She has developed a cough during the day, which troubles me a little, but again, we're just being watchful.

God has richly blessed us in so many ways; we are thankful for his continued care and for your prayers. Jo was able to attend and be a part of Kara's wedding and was a beautiful maid of honor. We have high hopes for this new drug (since it's derived from a sea squirt, it's organic and not man-made). We continue to thank God for his infinite wisdom and guidance and his love for us. God bless us every one.