Updates on Johnna Hood and her daily battle with stage 4 metastatic synovial sarcoma.
Friday, June 3, 2011
We had our dr's appointment; dr was rather noncommital re the arm pain; Jo said she thought he might think it's another tumor, but I didn't get that impression-I think he either doesn't know or doesn't want to say his thoughts on the matter. He was more interested in her lack of energy and low eating habit. He prescribed prednesone to boost her energy and her appetite (she's lost 68 lbs). / He did get permission to administer the new drug here in Springfield, so we won't have to go to Peoria and get used to new people and a new routine. He doesn't have any further information on it, however, because they won't send it until Jo's physical condition meets their criteria. He was sending her labs and progress report to them after our appointment on Tuesday. / He was non-responsive to her announcement that she didn't want to do any more treatments until after July 4th weekend. He just said we'd have to see what information we received regarding the new drug. Then he said he would be out of town until June 21 and made an appointment for us to come in then to discuss the new drug (presuming he has the info by then and Jo's physical condition is improved or at least holding stable). We explained that Kara is getting married on July 2nd and Jo was crying when she told him she's already missed one family wedding but she's not going to miss this one. At that point, he made no comment, but at the end of the session he said that he didn't want to make her miss her sister's wedding, but we'd have to abide by the info we receive from the people governing the new drug we want to use. We'll build the wedding bridge when we get to the river (on 6/21, I imagine). / She's been on the prednesone for two days; it has helped her appetite and her energy level is a little higher. We put the Fentanyl patch back on and it's helping with the arm pain; still there, but more manageable. / As always, we thank each of you for your continued prayers, good thoughts and moral support. We continue to look to God knowing He is in charge and His faithful love will sustain us. "But Jesus beheld them and said unto them, 'With men this is impossible, but with God all things are possible.'" - Matthew 19:26 - Miracles still happen every day; praise the Lord. / Take care and God bless ...
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